"This is the Moment We’ve Been Waiting For: Home is Near!"
So what happened today?
Crazy day. Oh my gosh. So we walk into the NICU thinking, okay, today is his 37 weeks. We were excited because every Saturday we flip over another gestational week.
We walk in and the nurses and the doctors say, you're going to be so surprised.
We're like, what do you mean? Yes.
We peek around the corner.
I was thinking you crave me personally.
Lorenzo was on two liters of high flow.
Yes.
What?
What? Without a test, without nothing?
Yeah, because usually they do, they test his blood gas on Mondays and Thursdays. So that's when they decide to like bump him down. And they said this morning, they were like, you know what? The last time they tested him on Thursday, he went down to three. Today they said he looked so good they were
thinking should we? And then listen we told you if you miss our life we we told you can usually they go in one liter per week yes we did in one week we did five
liters! I was telling you last Saturday we were on five liters and now Saturday we're on two which is the final step before you go to either room air or low flow, depending on what the baby needs. We were in shock.
We were super in shock.
But he was totally rocking it. He was so good. He was like, guys, I told you I could do it.
Yeah.
I told you. And so what is the plan Monday?
Monday, they're going gonna do another blood gas and if that looks good they will try a room air trial which is where they remove the high flow and see how he does breathing totally on his own without any support at all. It sounds so crazy. I mean, what? And if he does well they keep him on room air.
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Get started freeYes.
And if they feel like he needs a little boost of, they keep him on room air. Yes. And if they feel like he needs a little boost of oxygen, they put him on low flow.
Yeah.
Which I think, so Ruddy's on right now is 2.2 liters. I think low flow is 0.1 if I understand correctly.
Yeah, it was like something like that.
And then you wean off to like 0.01 or something.
Yeah, it's nothing. Like low oxygen is nothing.
Yeah, well the oxygen, that's the puff of air, I guess. Puff of air. And then, I don't know, the oxygen all depends on what the baby ends up needing for his oxygen saturation, but right now he's doing so well,
I can't believe that he's on two liters.
So the plan is, you forgot, if Monday is going to be air,
Room air.
Tuesday, we start bottles.
Even on low flow on Monday.
Even on low flow?
Even if he switches to low flow.
Tuesday we do it.
Yeah, we start trying. And we talked to the doctor today, so he would start trying bottles, but she said, because I like to breastfeed, we can try that first. To see if it's...
For that to be his first experience.
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Get started freeYeah, it is crazy.
Yeah, he's going to start eating.
So then from there, it is three...
We have no idea.
We have no idea. Average is four is four weeks but people say three some people two let's say this next week is going to be a little bit uh he have another ism by the way it's came today even his ism so everything is fine it's fine he doesn't have any like disease but his
eyes are still too premature to say okay yes so again we have to follow up again so we're gonna follow again which we knew was gonna be the situation but yeah it's better to not see anything bad right now exactly and then just follow up it just follow up it's
something that we're gonna do it even when we discharge so so so because he has a weak then maybe we're gonna check no, we're not going to check his heart. Moreover, we don't check that.
But because we have, oh, we check, oh, you see next, this week is going to be crazy.
They said, I'm pretty sure either this next week or the week after he has a follow-up echo for his heart to check his PDA. And they still don't hear it. Yeah. Like more and more they don't hear it at all so I'm really hoping that it's closed. Yeah just that ISM is in the hard way because usually when they have the exam they have problems. He's done so well with the other two. He did so well but you never know. And as they get older they get more opinionated.
Obviously. They're gonna be moreated, and so we'll see.
And we forgot one other thing. So you know how he's in an open crib now? Basically, what they've been doing is he's got his isolette, and they raise up the top of it, so he's in an open crib. He actually moved to a big boy crib today, so it just actually looks like a real crib.
A real crib, yeah. And Mizza here is happy, except, hey, listen, your brother, we need to finish the room. We need to finish to do the room because we need to go, uh, your brother's coming home. I believe in Lorenzo, right? He's doing so well. Ok, guys. Ok, guys. Next update.
Ok, guys. What you notice here? It's not anymore the high flow. It's nothing. Right there. It's Lorenzo without no Oxygen even the small one. I think this is just in case this is the oxygen I assume it just in case it's the low flow if he needed but
He's here It's a beautiful I guess so OG Lorenzo since la machina yes guys he is
off the breathing support he's doing his room air trial today so far it's been
going well so far it's going well so just for letting all the people tomorrow
what we're doing so if everything keeps going well today, tomorrow he can start trying bottles slash breastfeeding. So originally we thought that he would have to go to bottles first but they told me that we could try latching tomorrow first and they said that even that might be better just for future. He obviously has to take bottles at some point because he has to have a mix of stuff. But yeah, we're going to potentially try
feeding for the first time.
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Get started freeIt's crazy. Yeah, tomorrow is crazy.
So tomorrow, Martedì, it's going to be a crazy day.
So much has been going so fast.
So fast.
I have to keep track.
So now he's going to, I now the he's gonna I believe he's gonna make it for the 40 weeks like I'm hoping
hearing early I don't know depend tomorrow it really all depends on how he eats he eats yeah which he has been going crazy with his pasi lately like the last two days he is very hungry right before he gets his like tube feed and he's like yeah on the passy which they say is really good sign it's just going to depend on a few things like if he can get the eating and swallowing and breathing thing down and or like if he can keep his oxygen levels up sometimes they get overwhelmed sometimes they get too tired so they fall asleep before they finish eating there There's a lot of different variables but I'm hoping that he's gonna
figure it out. He's gonna figure it out and yeah I can see the light. So now you are making his room, you're painting his room. So with the design, everybody already see from the life a little bit. So now we just finished the design. So now you go back there to try to finish we try to clean the house we're gonna clean everything yeah we were thinking to have another month and a half but now it looks like we have a
couple weeks I think we need to be ready at any moment because he just like he did this week he just decided, I'm ready to breathe. So.
Yeah, this is crazy.
Dai Lorenzo, we're waiting for you at home.
Allora oggi, cosa ha fatto Lorenzo?
He did his first latch with breastfeeding.
It's amazing. So how is the thing now? What is, we're looking for?
Well, now he's gonna just keep doing bottles and breastfeeding until he can take all of his feeds that way.
Amazing. Grande Lorenzo, ragazzi. Oggi è martedì. We start today and then we start butters. Amazing. Grande Lorenzo, ragazzi. Oggi è martedì. We start today and then we start butters.
Dai, amore. Dai! It's close.
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